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Throwing some love our hospital’s way

For the first time, we walked into our hospital no longer in treatment.

We are still under their care, but Peyton is no longer a “patient”.

It felt good!

We’ve had a love affair with our hospital and clinic from the start, and we never cease to be thankful that Peyton was diagnosed in a location that has such an awesome children’s hospital available.

The first year of her diagnosis Peyton was chosen to represent the hospital at their Children’s Miracle Network Telethon and they produced this video of her at the clinic.  Please don’t look at ME in the video, I thought they were just going to be shooting her and was woefully unprepared.  But Peyton sparkled when the cameras turned on her.

The second year we were picked to be a part of the announcement of the Vinny Lecavalier donation to All Children’s Hospital…they’re naming the whole oncology wing after him….NICE donation…but suffice it to say that when Peyton is DONE with the photo op with the hot hockey player, she is DONE!

Today we got yet another chance to sing the praises of our hospital by participating in the US 103.5 Miracle Network Radiothon, being interviewed live by Jenny and Travis.  DO NOT feel like you have to listen to the whole recording of me gushing…because, believe me, I GUSH a lot!…but you have to check out the first couple of minutes and listen for Peyton to say the sweetest words..”No More Chemo!” Awwwwww

Peyton and Ann

Peyton with Jenny and Travis

Jenny and the gang…including Rachael “Half-Pint” Mayhew

Thank you so much to Ann Miller from ACH, Jenny and Travis at US 103.5 and everyone at All Children’s Hospital for having our backs and helping Peyton in her battle.

The fewer words said, the better

Once upon a time…

There was a sweet little girl who liked to read.

And because she likes to get in character, she started wearing this bonnet everywhere.

And she was very cute.

When her mean mama said she couldn’t wear it to school, she wore this headband instead. Adorable, no?

Only she was covering up THIS.

Curse you, scissors.

Does anyone know when they stop doing this?  This is the 4th time!

One time I don’t want to party

I had this whole post planned about the “end of treatment party” or lack thereof.

I even had it partially drafted.

Everything I needed to say about this subject is totally encapsulated in the next sentences I’m going to type:

Another friend’s child relapsed this week. A young man, eleven years out of treatment, was diagnosed with a secondary cancer, a viciously aggressive brain tumor. A little boy is laying in a bed in the PICU, the cancer is gone but infection and complications are threatening his life.

I feel so tired of it all.

That is why there will be no end of treatment party.  I just can’t.  I can’t celebrate something that’s left me feeling so raw and vulnerable.

I am happy our daughter has finished treatment. I can’t even tell you what it feels like to say those words aloud.  My daughter doesn’t have cancer anymore, she’s done with chemotherapy.

Why would I not be dancing on rooftops?!

Well, unless you’re really new to this site, you know that I’m the teeniest bit C.R.A.Z.Y.

Me = Crazy like Starbucks = Coffee.  (Them’s the full extent of my math skills, there will be a test later)

We are two night without chemo and YES I’m full of anxiety and fear.  I am consumed with the “what if”, I feel as if I’m just waiting for the other shoe to drop.  I’ve seen it drop, far too many times.

Because, although I pray for her healing and I know God’s hands are wrapped all around her, I also know that sometimes God’s plans hold the unwanted.  And that sucks. So I pray for an accepting and faithful heart.

There are times I get God mixed up with Santa Claus…I want to write a letter and lay back, confident that my wishes are going to be met.

I’m praying. HARD. That my baby girl is going to be ok, that I’ll get my act together and get a grip, that I’ll be a better wife and mother, that I’ll be able to be a friend and a support to my friends who need every encouragement possible.

ps….a post I wrote is being highlighted on today, so go check it out….sadly, it sort of fits my mood today.

Oh the games that children play

Peyton’s last day of chemo picture (taken with my awesomely new and fabulous camera!)

Peyton’s announcement:

“I showed all my friends my port at school today and Hayden didn’t believe it was a port.  He says it was my boob and it’s not a boob, it’s my PORT. So I showed him that it wasn’t my boob and he said my port looks weird and it looks like a boob. And Hayden’s not my friend anymore.”

My response:

“Well, you know it’s a port and that Hayden is wrong.  So, just don’t tell him about it and DON’T show him and it’ll be ok.”

Peyton’s comeback:

“Well, ok, but when I do have big boobs, I’m not going to show him.”

Think I can get her to sign that one in blood?

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Check out my review for Kajeet (and comment if you love me!) at

And I forgot to tell you about my post for Sunday at 5 Minutes For Special Needs

PLEASE PLEASE PLEASE Nominate a child for the Blogs Can Change Lives contest at 5 Minutes for Moms

You can help put 10 Sony Playstation PSP packs in the hands of critically ill children

If you don’t know a child to nominate, please see my list of “Kids Who Inspire Us” and pick one

My constant in all the change

This summer I made a choice to switch over Peyton’s site to a different format.  I was concerned that the change of look and putting ads on it would alienate readers who’d been through each day of her treatment, perhaps they would feel I was selling out my daughter.

And there were definitely those who felt that way.  There were some who thought that I should keep things as they were, just a daily journal of Peyton’s cancer, dedicated solely to her treatment and what that world entailed.  Some thought that I would become less genuine, I would write to gain readers.  I would sensationalize or glamorize our lives to attract attention.

I didn’t even know what a blogger was.  The only real blogger I read on a regular basis was Dooce and that was only because a friend had told me she was funny, not because I was seeking out bloggers to read. I had never left a comment. I was a lurker, I guess. I knew nothing about social networking, I didn’t get the community of bloggers, I was totally clueless about what I was about to get myself into.

To be completely honest, I fully expected to fail and fail miserably at trying to take this site more public.  It was Peyton’s site up until that point. The moment I made a change to it, it became MY site.  It was my words, my feelings in a whole new light. To an entirely different group of people. Who would want to read a cancer child’s site?  Yeah, it was about my whole family.  There were funny parts, but there was also a tremendous amount of sadness that went with it.  Nothing about our lives was remotely stable, from day to day I was never quite sure what was going to flow from my fingers.

Why would anyone WANT to read that?

The more I read, the more I was sure that blogging was not for me.  I could write about Peyton’s treatments and the adventures that were a part of our family, but I couldn’t write as funny as some, I wasn’t as thought provoking as others and I had to be on my best behavior, which meant I couldn’t be as outrageous as that whole group of bloggers over there.

I just continued to write as always.  I tiptoed into the social world of blogging, I began striking up conversations, emailing strangers….always surprised when they emailed back.

I was making this transition as a bulk of the blogging world was preparing for BlogHer, a huge conference for women bloggers to connect and network and learn from each other.  Me?  Not so much, I was so lost in the Blogher-this and BlogHer-that. It sounded like fun, full of parties and swag and new clothes.  There was even dancing.

What amazed me was that it brought out the insecurities in practically every person I read.  I’m too fat.  My clothes won’t be nice enough. I don’t like to meet new people. What if no one talks to me. What if someone does? What if no one knows my blog?  How do I introduce myself to others?  Will it be all cliquish? Will the cool kids let me sit at their table during lunch?  What if I’m only funny on the computer? How could these people who stick it all out there for the world to see be so freaked out by people actually seeing it?

It struck me that all of a sudden I was very aware that people were judging me.  I wondered if they thought I was a bad mom because I posted pictures of Peyton at her sickest…I wondered if they thought I was funny, not laugh WITH ME funny, but AT ME funny….I wondered if they saw our lives as some fictional existence instead of the bizarre reality that it is. I was considering people’s perceptions of me in a way that I had never been when it was “Peyton’s site”, now that it was mine I worried what people were reading into what I wrote.

Although I had said that I wouldn’t change just because I mixed things up a bit, I did.

I began to see what I was doing as a job…not in a bad way, but as something that I applied myself to each day and took more seriously.  I did allow it to take on more of my voice as a woman, a wife, a mother, a friend, a creative soul….not just Peyton’s mom, a cancer mom.  It became this vessel to share our lives and to raise awareness of what this cancer life is about, not just a tool to update about blood counts and side effects.  It allowed me to embrace that life was moving beyond the all-encompassing cancer.

Can I tell you how glad I am to have this blog as I transition from one phase of this life into another?  We are ending this treatment stage and moving into the hopeful future and it’s going to be harder than I ever dreamed. I will have to start weaning myself from the cancer support that has been a day to day part of my life….slowly, people, don’t expect cold turkey from someone like me…and trying to get used to being a “normal mom”.

And in a very real way, I have been building up my own support group in the blogworld.  I’ve met people…both readers and other bloggers…who are kind and full of love, some who lighten my days with laughter and wit, others who understand the frailty of life and the fears that go with it. This blog is a constant.

I love this blog.  My heart overflows with love for each person who has taken the time to read, the lurkers and the commenters.  I had no idea what a blessing and comfort it would become for me. I never anticipated the community that woud rally around Peyton and our whole family as we fought this disease. I thank you all for being a part of our journey and I hope that as our lives begin another transformation that you’ll all still be a part of it.