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On with the raping and pillaging!

Nathaniel turned eleven yesterday.  We did the birthday celebration with friends and food and cake and ice cream and singing and WHEEEE! and lots of conversations revolving around the words “shoot”, “stab” and “fart”.

Good times!

…and yet.

The fact that my firstborn turned eleven wasn’t the biggest jab in the force field that keeps me safe from things like aging and cellulite…it was the DREAD of what I’m doing today.

What would that be?

I’m taking my kids to the Gasparilla Children’s Parade…we’re riding on a huge float and throwing beads and celebrating years of Tampa-based piracy…and to do so I’m supposed to wear something along these lines:

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*Which, yo, BlogHer buddies, I’m so bringing this outfit to Chicago! ARGGGGG*

And while my dreams would be to look like this when all the dressing and corsetting and hoisting of the bosoms is complete….

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I think we all know that it’s going to end up something more like this…

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Happy birthday, Nathaniel!  As a show of my love, I’m going to humiliate you in public and probably post pictures of it on the internet.

You can thank me later.

It’s hard work being this crazy

I have struggled with whether or not to share this much insight.

Because I don’t want you all to really think I’m crazy.  But, honestly, have I ever really tried to play up the image of perfect sanity?

Nope, I don’t even try to fake it.

I can talk about my crazy.  I can divulge some of the surface crazy.  But this is the down-to-the-bone crazy that sneaks up on me and smacks me down ninja style when I least expect it.

It doesn’t have to make sense…more often than not it really doesn’t.

Let me see if I can walk you through it.

I try really hard to live this life with the belief that things happen with a purpose and a meaning.  I believe God has a plan in my life and although there are times I go down kicking and screaming, THAT’s the plan that ultimately comes to fruition.

Looking back over the past years of our lives, I can pinpoint moments when choices were made or taken from us that impacted everything in our lives…for better, for worse…they were right.

The disbelief that stunned both Peter and me when the doctor came to us four years ago and explained I was having a stroke was almost comical.  Dude, I’m 30!  I have 3 little kids!  This is the first day of our FREAKING vacation!  I can’t be having a stroke.  Check again.

But it was true. I felt trapped in my body for so long, weighed down by the medications and the depression that followed.  I got up at four AM every morning to watch the sun rise, to make myself some breakfast, to let my body move…before I took my meds…because I knew that after I took them, I would no longer be able to carry on a conversation, I would be sitting in a chair watching my children play around me, unable to play and respond as I should. Shortly after I came home, some friends came and got me to go out for breakfast. I was devastated to realize I couldn’t even participate in the conversations around the table, by the time I’d processed what was said and figured out what to say, they were far gone to something else…I just sat there silently trying to understand if this was the new me. Every day the part of me that just wanted to die got bigger and bigger…I didn’t want to be this person, a shadow of the mom and wife and friend and Anissa that I knew I used to be.  I wasn’t strong enough to be this broken version of myself.

With time came changes in medicine, a near-death moment when I know in my heart I chose to live, therapy, recovery, strength, faith, and a newfound belief.

I’m so glad it happened.  No, really, I am. If that had never happened, I truly think that we would have fallen apart as a family when Peyton was diagnosed.  I didn’t know it at the time, none of us ever could have, but we were in training for the crisis yet to come.

After the stroke, the recovery and the drive to better our lives, Peter decided to look for a new job.  He was ready to move. He wanted to move.  Every day was a new possibility, a new opportunity.

And nothing. He couldn’t get a phone call, an interview, nothing. He was so discouraged.  I remember that just before he started his vacation in July 2006, we had a conversation about how he wanted a new job so badly, but that we knew if it was meant to happen it would. It was a bitter pill, easier said than to accept.

Less than a week later, again on the first day of Peter’s vacation (which you’ll all be relieved to know that we’ve made a pact to NEVER vacation in July ever again as long as we live), we found ourselves in a hospital AGAIN, this time getting the news that Peyton body was full of cancer.

We were meant to stay here, Peter wasn’t meant to find a job somewhere else.  I was meant to have my stroke, it made me a more compassionate and understanding mother to what Peyton would go through. We even shared some of the same medications, I KNEW how she felt when her body raged out of control and she hurt to her core. It all came together in a way that, looking back now, fits and makes sense and feels right.

Our choice for Peter to take a job that would move him 400 miles away from his family was a hard one…but made with confidence that it was the right choice. The signs were there, doors opening and paths smoothed to make the transition work.

And we’ve felt that as we plan this final move, to bring our family back together, those same doors would open and the paths would smooth again.

Yet, they haven’t.

It’s been frustration after disappointment and a lot of feeling as though we’re banging our heads against the wall.

I feel this urgency to move, to GO.NOW!

(here comes the crazy, stay with me)

I feel this rattling fear that if we don’t move now, something bad is going to happen.  I can almost phsically feel the ties tightening around us here, and if we don’t break them and go, we are going to be here for a long time. Why is everything seeming to work against us?  Is there a greater meaning to what feels like doors slamming shut?

Some part of me thinks we can outrun it.  I don’t even hesitate to say how nutty it sounds.  If Peyton’s going to relapse, she’s going to relapse regardless of WHERE we are. I KNOW that!

But for all the joy we’ve experienced lately, the happiness at her end of treatment, and the overwhelming relief at seeing her successfully go through her port surgery…I AM still a cancer mom in my head, with all the irrational panic that goes with the label.  It doesn’t go away because she’s in remission.  It doesn’t go away because we stop the chemo. It doesn’t go away because the port comes out.  I don’t know WHEN it goes away. If it ever does.

When things go as planned, when it’s almost too easy, I know in my heart that we are on the right track.

When things are hard and we have to fight for every step forward, our experience is that it’s not going to happen.

I’m so frustrated…with the being separated, the not knowing what’s happening with our move, with the living under a cloud of doubt and fear…I’m tired of it.

I think we can outrun it.

If we can just get a house, she won’t relapse.  If we can just start packing our boxes, the cancer won’t come back. If we can just find the first foothold into our new live, we CAN outrun the fear.

Yeah. CRAZY. I know it.

She had her monthly clinic visit for blood counts and a checkup…the one we’ll be doing every month for the next  year…then bi-monthly the year after that…and so on and so on.

Her counts were good, exactly what they should be and fine and perfect and just FREAKING.NORMAL.  She looks great, everyone says so.

But I need something to start working out, something to go right with this move.  Because I’m tired of feeling like we’re being kept here for a reason.

I can’t deal with what that reason could be.

Celebrating the day our own special way

I saw this great thing!

And then I had a fun idea.

But then I saw that someone else had already done it…actually, a LOT of someones had done it.

However, I’ve never bragged about my originality, so you’re getting it anyways!

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We really might as well go ahead and call FEMA now.

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Oh, she haz it….watch out world!

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I got nothing, this one says it all.

What a year it’s been so FAR! I feel like we may be the only family in the U.S. happier than the Obamas tonight.

La La La, I can’t hear you!

Nathaniel – How did you sleep last night?

Me – Oh, pretty ok, except I got sick in the middle of the night (tremendously random 6 hour flu type sick) and then there was a really freaky dream…but other than that it was ok.

Nathaniel – What kind of dream?

Me – Oh, something funny, but not something you’d understand.

Nathaniel – Why not?

Me – Well, I dreamed we moved into the Playboy Mansion.

Nathaniel – Oh, I know what Playboy is.

silence.

thundering, pounding silence.

I will take this moment of utter silence to think fondly of the many Nathaniel moments, and he’s had his fair share, that make me want to reach in and yank out my womb for fear that any more like him would choose to take root…I can only handle so much.

Me – WHY do you know what Playboy is?

Nathaniel – It’s in that movie, ya know?

Me – (there might be a little screechiness in my voice…just a wee bit) WHAT move would THAT be?

Nathaniel (completely oblivious to the fact that my brains are boiling inside my skull….he’s a 10 yo boy, why would he care?) – You know, that one about the kid that gets left alone at home…Home Alone, that’s it.  His brother has one and he finds it and he looks at all the naked girls and says “gross” or something.  It’s a magazine with naked girls in it.

Me – Oh. Yes, it is, it’s totally gross and terrible and your eyes will burn out of your head if you read it and everyone will know that you looked at the nakedness by the horrible rash that will spread all over your body. *k, might just be making that last part up now, but I totally wanted to say it*

Nathaniel – Why would anyone want to look at naked girls?

Me – I have no idea, let’s just talk about something else now.”

Nathaniel – Ok. Hey, did you know that UnamedChild’s sister is having a baby?  She’s not even married yet!

again. silence.

Me – So, how about those naked girls?

Just what you’d expect a Monday post to look like

It’s 2AM and I am full of tired right now.

So you’re getting a quick update on all the pertinent issues and I promise it will require no tissues!

Peyton is doing remarkably well post-surgery. The only tears came at taking off the bandage and then she rebounded quickly, because this kid? Is awesome.  She’s been tired and less Energizer Bunny than normal, but so happy and still playful.  Again, I CANNOT believe that port is out!

There’s been a lot of questions about the house.  Well. Yeah. That.  We made an offer, they countered, we countered, they said MEH, we said BITE US! and now we’re both just sitting back and sort of holding our breath to see which one will cave first.

Seriously!  Do they not know about the housing crisis?

I adore that house, I WANT that house, but if it doesn’t work out, I know the right house is bound to come.

If you’d like to say a prayer, cross your fingers, sacrifice a chicken in hopes of us getting that house, we’ll take it with much gratitude.

And now?  I sleep.

OH! I do have to share a teeny tidbit of how my family works.  You know how much we love each other?  At a friend’s house this weekend Rachael ate a nice HEARTY dinner.  In appreciation, she sat back and rubbed her cute little round belly.  Nathaniel, being the smooth talker he is, leaned over and asked his sister, “So, you having a boy or a girl?”

Some day when she understands the gist of that joke I’m going to hold him down while she takes a few swing on him…he deserves it!

One last thing: I would like to thank the Pittsburgh Steelers for winning their playoff game today, thus ensuring that my birthday (which just happens to fall on Superbowl Sunday) will be a day of much celebration and Peter joy…none of it will be directed of me…but at least I’m assured all the beer and chips I can ingest. YAY me.