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My first wheels

Just to keep things interesting, I like to mess with my kids. Perhaps that surprises you…you must not have been reading this blog for very long.

Tonight at dinner, the kids were getting a little down about not seeing Pete and to break up the moodiness I threw out a challenge. I would buy a Wi for the kid who could lick the tip of their elbow. What??? Offering to buy a tech toy that you pretty much have to sell your soul to the devil to get your hands on this time of year?? If you’d been sitting around my table, you’d have understood why that was a safe bet. The kids spent the better part of 10 minutes contorting their bodies, to the point of trying to dislocate their shoulders, to get their tongues to touch the elbow….there were a couple of times that I was worried that Rachael might actually do it…she could be a fill-in for KISS.

So, I promise, you won’t be disappointed, try it at home….plan ahead, get the video camera ready…it’s priceless!

The kids and I got the Christmas tree up and fully decorated tonight, it was fun and we only lost one bulb. It was great, it looked like our tree was decorated by oompa loompas in that there were only bulbs on the bottom half…what can I say, they’re short?? As I am no basketball player, there is currently no angel or star on top.

What do you get the child who has everything? Well, a SWAT team assault vehicle, of course!

At Little Tales yesterday, the Tampa police and firemen came out with a truck and an assault vehicle to let the kids crawl around in and to promote the Badge Bowl. The Badge Bowl is this coming Saturday, starting at 5 PM at Wharton High School. If you can make it, please do, its going to be so much fun and I can’t wait to see Nathaniel’s face when he gets to ride on the firetruck and hummer. He was pretty irked that Peyton got to hang in what looks like a tank while he’s taking a spelling test.

“Awww, come on! She doesn’t even know what it does!”

As if Captain Commando there would have been able to actually DO something with it.

But the kids got to crawl in and out of the different vehicles, they all hammed it up for the reporters and we are hoping for a wonderfully successful event. Our friend Brooke Martin is the BB recipient this year and we want to see a HUGE crowd come out to support them.

There are so many who need prayers right now, I can’t even begin to list them all. But please ask the Lord for health, healing, strength and comfort for each child suffering through their disease, for successful treatments, for good test results, for each family member struggling to maintain faith and focus, for every doctor to have His wisdom and guidance leading them.

f.r.o.G…fully relying on God
–Anissa

ps….The Daring Duo has officially become the Three Amigas, our new friend Presley can seriously hold her own with Adelaine and Peyton!

I call this picture “The many stages of Cancer Hair”

Sad Molly

I’m so sad for Peyton today.

We were in the car and she was having one of her conversations with her kitty Molly.

“Molly’s sad, mommy.”

“Why’s Molly sad?”

“Her daddy moved away and she misses him.”

“Oh baby, are you sad?”

“No. Molly is.”

“Are you sure you’re not sad?”

“No, Molly’s sad, her daddy left.”

“So, you’re not sad, Molly is?”

“Yeah.”

“Are you projecting your feelings?”

“Huh?”

“Never mind.”

We went to the clinic this morning and our half an hour appointment to get a finger poke and overall check lasted over two hours. Not because of the clinic, but because it was like a high school reunion with some dear friends we haven’t seen in a while. Both Sydney Sims and Jessica Rose were in today and we got to do a little catch-up. Our sweet friends Allie and Zack were there as well and we just spent so much time chatting and playing with them that it took us forever to leave.

Peyton’s counts were great, lower than last visit, but that’s to be expected with the upping the dose on her chemo. They were still in a nice range, but down where they want the numbers to be. She’s doing so well. In the face of so many who aren’t doing well in treatment, it’s a reassurance to get that piece of paper in my hands that tell me she’s ok, nothing fishy in her blood, counts right where they’re supposed to be. I feel bad because I know so many parents don’t have that gift right now, but I’m so very thankful for Peyton’s continued positive progress through chemo.

We went and got a new Christmas tree tonight…not a real one…one of those great numbers that are pre-lit! I’m so lazy. If I could find one with ornaments that sort of just APPEAR…I would be so all over that. The kid and I are looking forward to getting it up and decorated tomorrow night…then they’ll be pressuring me to put presents under it…give them an inch, you know.

Please give some extra prayers for my friend Kathy, they just found out her husband has colon cancer, spread to the bowels and possibly the liver. He is in a lot of pain and they have yet to able to start treatment because of all the issues his tumors have caused. Just keep these wonderful friends of ours in your prayers. Cancer is just miserable, it doesn’t care whose life it is ripping apart, it just tries to consume completely. For each family battling tonight, a special prayer of hope, strength and faith.

Psalm 46:1
God is our refuge and strength, an ever-present help in trouble.

f.r.o.G…fully relying on God
–Anissa

Cold!

Thursday night, the kids and I headed to the International Mall in Tampa to enjoy the best kinds of fun we can have. The kids were treated to food, ice cream, and every Build-A-Bear frivolity you can imagine. The parents were treated to an awesome dinner out and afterwards, we were gifted with beautiful Christmas portraits of our kids. We came home with a Ballerina Cat named Molly (named after the daughter of Sara, our Little Tales director), a High School Musical Poodle named Presley (named after a new little friend, Peyton’s age with Leukemia) and a Pirate White Husky who is much too manly to need a name. Each child went home with a special new friend and a night of memories to cherish. The parents went home with achingly full bellies and another great opportunity to connect with other families and share our trademark brand of normal.

Friday was a day full of great experiences. Like, walking through Khol’s and watching a salesperson fall off a ladder when she hears Peyton ask the question “What’s a vagina?” Did we not all know that was coming at some point? We’re browsing mittens…checking out the jewelry…sniffing some perfumes…what’s a vagina? I know that’s what I thought when I first smelled Celine Dion’s perfume. Are you kidding me?

So, my very clinical and honest response was “Would you like one of those bracelets over there? Aren’t they pretty, Peyton?”

Catastrophe diverted. I should work for FEMA.

But we did get our wintery hats, mittens and scarves…and carried them to the car in the 80 degree weather. I practically had a heat stroke just holding the bags.

Before we jaunted to Orlando, we got to participate in a birthday party for our friend Mathew Gliddon. The great news is that he got to go home from the hospital on Friday, so he was all smiles and happiness at the party. The bad news is that he will be returning to the hospital for more treatment very soon, but at least he got to spend his birthday celebrating with many loved ones, surrounded by friends who just adore him. He had a combination Cars/Thomas the Tank Engine themed party, and it was enjoyed by the masses. There’s nothing quite like getting a group of immune-deficient cancer kids with low platelets together and giving them a stick and letting them swing it with all their might. We’re proud to report that two piñatas went down, but not a single child. There were a few close calls and many parents had to jump in to save a child here and there, but it was a completely head-wound free party….which is always a success in my book.

Can I just tell you what neat thing happened? One of my favorite websites to hit each morning is Woot. Woot has 1 thing that they sell all day, it might be something great, it might be something very random. But they only have 1 thing, and you never know how many there are so if it’s something really cool, it might sell out fast. They have great prices on the 1 daily item, so I always have to check and make sure it’s not that THING that I’ve been waiting on forever. They even sell a thing called “Bag of crap”…you never know what you’ll get, it might be Dead Sea Scrolls, it might be pencil erasers…who knows! It could be three completely awesome things that you never even realized you needed, or it might be three stocking stuffers for your in-laws. Anyways…this really isn’t an advertisement for Woot…a few weeks ago, the daily Woot was a train set, a miniature working train set that I saw and immediately ordered as a Christmas goodie for my dad. He’s a big train buff and thought he’d enjoy it for his office or something (I think you know where this is going, so SORRY, Dad). It arrived the afternoon that it was decided that we would be throwing a party for Mathew’s birthday and that it would involve trains. I love my dad, but no one could have enjoyed that train set more than Mathew and no one deserved it more. How is that for God providing the perfect gift when you didn’t even know you needed one?

After the birthday party, the kids and I headed straight over for Orlando. We were staying at the Gaylord Palms Hotel…which my kids decided was the greatest place ever. We were in a beautiful room that overlooked the atrium that was full of plants, waterfalls and Christmas decorations. Just a huge warning for you all!…unless you are extremely hard of hearing, bordering on completely deaf…don’t ever let them try to convince you that the Atrium room is an upgrade. Although it was gorgeous and the kids got the biggest kick out of the balcony view of the atrium, it was the loudest room I’ve ever stayed in…and that’s totally not counting the three Mayhew kids INSIDE the room.

But, the hotel was fantastic, the decorations were out of this world, the people were so tremendously kind. We got checked in late, so we weren’t able to do any of the Christmas shows, we had time for a snack, a bath and bed. But thankfully, my kids got my up at 6 AM so we would have time to enjoy some of the hotel…thankfully….oh yes, thankfully. We met up with our other friends who were able to make it, both those who stayed the night and those who came over early in the morning, and we were given a private tour of the ICE exhibit.

That’s a huge koi pond behind the kids. Picture the conversation that went “Hey! Look at that big fi-” “GRAB your sister!”

WOW. If you’re local and you’ve never seen it, you are missing out on a spectacular opportunity. Apparently, in China, the art of ice sculpturing is more than something you see at dinner parties and cruise boats! These artisans are just amazing. We went from scene to scene, rooms completely created from blocks of ice, animals, buildings, flowers, people, a complete Nativity scene…and were just blown away by the skill it took to create this place. There was even one whole room that was huge ice slides for the kids to go down, with stairs made of ice, railings made of ice…you get the picture. The kids LOVED it! I can’t even begin to explain how gorgeous it was, the detail was extraordinary and it was an event to remember.

The CandyLand themed room

An angel

The life-sized Nativity scene

Penguins

It was also flipping cold! It’s kept at 9 degrees all the time to preserve the ice, and for us Floridians, you would have thought we were touring the Arctic Circle. We’re pathetic. Anyone with snow on the ground would probably welcome the chance to take a swing on us.

Thank you so much to the Children’s Cancer Center for each and every event we were a part of this weekend. Thank you to the Gaylord Palms and Coke-A-Cola for allowing us to come and stay and be a part of their wonderful ICE exhibit….and for totally spoiling my kids on a Comfort Inn for the rest of their natural born lives.

Pete’s missed out on all this fun and it would probably be making it a better time away from us if we were sad and pining for him, but he knows that we’re having a good time, so that makes it harder. We so wish Dad was with us, the kids said it countless times. But Pete’s doing well up there. He loves the new workplace and he’s still getting his feet on the ground, but I think it’s going to be a great fit for him. Today he got his reclining chair and bed delivered. The man has spent the week on an air mattress! So, he’s going to be enjoying his first night on a bed.

I have to let you in on this funny little tidbit. For a going away present, I got him an alarm clock. As I’ve mentioned before, Pete’s a heavy sleeper….think borderline hibernation. This alarm clock is on wheels, and after you snooze it, it is programmed to roll off of whatever surface it’s on and HIDE. It roams around for a place to hide and then it goes off, and it continues to go off until you locate it AND are able to reach it. Pete’s first experience with it this week was when it burrowed itself under the air mattress went off and freaked the ever living daylights out of him!! Needless to say, he got up.

f.r.o.G…fully relying on God
–Anissa

Birthday fun!

My poor unloved child. Only 5 boxes in the mail, 42 email messages/comments/posts and somewhere in the range of 22 cards. Doesn’t anyone love a cancer kid anymore!??

Seriously, what an awesome outpouring of love today for Peyton. I had her sitting on my lap, I’m reading her email and comment post after card and all she really has to say is “Show me that picture where I have cake on my face again! I’m so funny.” Yes, you are my angel, and staggeringly humble too.

But I thank you for letting me know all the awesome people who are supporting us and lifting us up with your constant encouragement. You guys ROCK!!

I would love to tell you that Peyton and I spent a lovely day together, wallowing in a mother/daughter lovefest. But after celebrating Saturday, Tuesday, AND this morning at 6 AM when she slapped me on my head and let me know “my birthday started”, I sent her off with her Grandma for her usual Wednesday spoiling and spent the day celebrating without her. Whooo hoooo! Party on.

Lots of stuff got done, I even had time for a hair appointment. The kids’ comments regarding the highlight job was “wow, mom, it’s totally in a pattern” and “when are you going to get the rest of the hairs done?”….as if I was so cheap I told them to just do the pertinent hairs. It was depressing to realize that coloring my hair was no longer a frivolity, I need to do it to cover up the grays that seem to be popping up like long lost relatives after a winner lottery ticket. I also realized that I now officially have “news anchor” hair. It’s smooth, it’s round and because the hairdresser used enough product to style an entire small Indonesian country, it’s hard as a rock.

Everyone’s wanting to know how the transition is going with Peter being in GA. First I shall confess an ugly, dirty secret. Pete’s actually in Alabama. ALABAMA, you say?? Yes, Alabama. His new job has several offices and the one he’s working in is right over the AL/GA border. So, the apartment he got was close to work and not in GA, but in Alabama. You know there are things about that situation that I’m just aching to write. When we make the big move, we will be locating into the south Atlanta suburb area.

Overall, things are going well. I’m getting some stuff accomplished around the house, I’m keeping the kids busy so that they have less down time to think about how not having their dad here really bites. It took me 2 years to get Pete to make his own coffee and now I’m back to making it myself each morning…plus, I keep making full 12 cup pots and I have a fairly obvious hand tremor and the beginnings of a facial tic from all the caffeine.

It really doesn’t bother me much until the kids have gone to bed, the house gets quiet and I have to talk to my husband on the computer. I miss having him here so we can ignore each other in the living room. I’m enjoying the extra closet space and not having to call dibs on the bathroom after a car trip, but other than that, I’m just missing Pete.

Speaking of bathrooms, I have to let you in on Rachael’s latest. Yesterday, she come crashing into the bathroom, butt-nekkid, ready to hop in the shower and announces “Nathaniel’s on the other potty!” As I am on the one in the room she has just invaded, I look at her as if to say “OCCUPIED!” She looks at me, she stops and thinks for a minute and then asks the most BOY question I have ever heard.

“Can I just go in the sink?”

No, you can’t. Not just because it’s disgusting, I brush my teeth in that sink. But frankly, I think it might be physically impossible….unless she plans to stick her entire butt in the sink and go….which might just be worth the bleaching of the sink to watch her try.

Anyways. The kids are doing pretty well so far without dad. No big outbursts, no unstoppable sobbing and we have yet to hit the first big argument that ends in “I want daddy here!” It’s been non-stop since he left, and this weekend gets even busier. On Thursday night we are going to the International Mall, where the Children’s Cancer Center employees and volunteers will be taking all the kids to Build-A-Bear, Chick-Fil-A, and as many other places-that-require-a-dash-in-their-name as they can find. The parents will be heading to dinner as a group.

Warning: Pete is totally contagious. I have caught his geeky strand of sickness. In typing that we’re going to the International Mall, I actually produced the thought “Oh! The Mac store is there.” I am so ashamed. In 11 years he has turned me into a football-watching, sci-fi loving techno-geek. They’ll probably make me trade my ovaries in for a ticket to ComicCon…and just the fact that I know what that is shows the rapid advancement of my disease.

Friday the CCC is throwing a birthday bash for Mathew Gliddon, who is inpatient still, but will be getting a pass to celebrate his big day. We’re looking forward to bringing a big ball of happy into his day.

Friday night the kids and I are heading to Orlando to stay at the Gaylord Palms…which is the most gorgeous hotel that I’ve never stayed at, but heard tons about…and then going to the ICE exhibit on Saturday, courtesy of the CCC.

I can just hear Peyton in the ICE exhibit, where the temperature is kept at 9 degrees.

“This place is FREAKING cold!”

Yesterday, when she was trying to blow out the trick candles on her cupcakes at the CCC, she finally backed away from them and told Dana “Those candles are freaking me OUT!” Great thinking there, Children’s Cancer Center staff! The kid already has cancer and you’re going to put her into respiratory distress trying to blow out a trick candle. Nice.

Then Sunday we have a Christmas party for the Big and Little Buddies to swap some gifts and have some fun. We’re looking forward to seeing Eddie and Lilly before they head home to their families for the school break.

I plan to sleep all day Monday.

f.r.o.G…fully relying on God
–Anissa

Happy Birthday

I didn’t do pregnancy well. I didn’t glow, there was no ethereal quality about me…my goal was to get that person taking over my body out as fast as possible. Peyton was a miserable pregnancy. I spent the last couple of months on bed-rest, and I wanted nothing more than to NOT be pregnant anymore.

Peyton has always done things her own way, she came into this world in a spectacular manner and I can’t imagine why we ever thought life with her would be dull. I traditionally have quick labors, I believe less than 10 hours total with three kids (but it hurt for like 25 hours each, just condensed down, I swear!). I’d managed to go without epidural drugs during my first two deliveries and because I have the womb of steel, I decided I could do it again this ONE LAST TIME. It didn’t take me long to decide that I was a complete wuss, I would not be doing this whole pushing out of the baby thing without some serious drugs. At that point, I didn’t care if they were spinal, IV, or if Pete had to run out to a 7-11 parking lot and find a “guy”….someone was giving me some drugs and fast.

During delivery, I was supported by Pete and my best friend Dawn. One on each side of me and doing their best to keep me sane through it all. I remember being totally focused on the monitor and through each contraction, I would ask “Is it going down? Down? Down?” (for those of you who’ve never had the privilege, the monitor shows an uprise when a contraction starts, then goes down as it starts to receed)….all I wanted to hear was that it was going down because that meant the contraction would eventually end…and there’s Pete “No, it’s still going up, honey, still going up….oh wait, it might be….no, still going up.” If I hadn’t been laid out giving birth to the man’s child, I seriously would have taken a swing on him.

After what felt like a week, but in reality was about 20 minutes, the anesthesiologist came in!! Whooo hooo….the drug pusher is here! I go to sit up so that he can administer the epidural and Peyton basically falls out. Yes, slid out like she was coated in Crisco. She bounces across the bed and only the perfect timing of my friend Dawn saved her from using her umbilical cord as a bungee string, because she stopped Peyton’s roll off the bed with her thighs.

Peyton was born.

I turned to the doctor and the anesthesiologist and let them know, in no uncertain terms, that I wasn’t paying for the jobs they didn’t do!

Life with Peyton hasn’t been easy. There have been moments of sorrow and fear, but each day with her is a blessing and I cannot explain the joy and gratitude I feel to be given the awesome gift of being her mother. To look at this little God-given treasure and know that I had a part in bringing her into the world, it never fails to astound me.

Happy birthday, my sweet girl. I love you and you will always be my baby.

f.r.o.G…fully relying on God
–Anissa

Birth day….ok, really, did you need that one explained?

1st birthday…that’s how I eat all my cakes, don’t judge us!

2cnd birthday

3rd birthday