Our life has become an emotional roller coaster.
The lows are so low.
The highs are oh so high.
There are bad days like Saturday and Sunday where Anissa has difficulty controlling her emotions and making sense of things. Her speech seemed to take a downward turn. Her comprehension wasn’t all that great either. We think she’s “replaying” parts of her life at times. We were watching a little TV and she was talking like we were in the movie.
Naturally it was Shrek.
Why couldn’t she have gotten me confused with Bruce Willis instead of a large green ogre?
On those bad days, there are still sprinklings of good though. I did get to sit her up in bed and work on “trunk control”. I only do this if there is at least one other adult in the room with me. I also took her down to the therapy room and helped her to stand up. We were up for a grand total of a minute or two. We stood there together for the first time in month and a half while a therapist made sure her right leg didn’t buckle on her. It was brief, but great. At one point, I got her so frustrated that she moved her right arm. I didn’t mean to, she was sitting there seething and I was thrilled that I felt the movement. It just ticked her off more and she asked me to leave.
The nursing staff has been complaining about her lately because she keeps trying to get out of the bed or chair. At night, they’ve prescribed her something to help her rest comfortably. It hasn’t helped. She’s a little too strong willed for her own good these days, which is dangerous when you’re in a hospital bed for a reason.
Then, there are amazingly good days like Monday.
I think having all three kids up there with us is a little too much for her to deal with consistently, so I tried changing things up a little. I took her little mini-me, Rachael, up.
Rachael was in need of some one-on-one time with dad, and she wanted to help too.
We got to the rehab center and Anissa was fairly active. She wanted to go for a walk. So, her sister Angela took her for a stroll through the complex. Along the way, Anissa saw an ice machine and asked if she could have some ice chips because she was so thirsty. The big concern there is that they haven’t done the test yet to figure out if she’s silently aspirating. We talked her out of that, but it did give us an idea. We wanted to test to see if she could feel the differences in temperature. We got some ice, and 2 sponges on a stick, dipped one in the ice and proceeded to test her ability to feel the temp differences. She was surprisingly accurate.
At room temperature, ice has a tendency to melt. After a little while, she asked if she could have some water on the sponge. It may sound cruel, but I didn’t want to cause her harm, so I would drain the water out and she’d get a damp sponge in her mouth. We repeated this for a while. Then, she asked for something with a little more consistency like applesauce.
Think about that for a moment. She was aware enough to understand why she couldn’t have water, then she put one and one together enough about trying something thicker.
I gave in some and loaded up the sponge with water. She swallowed it down fine, then looked at me exasperated as if to say, “See.” I asked her to cough. She did. Then take a deep breath.
She did.
She asked about getting a dvd player so she could watch some tv. I told her I left it in the back of the other car.
She told me I was fired.
A little later on, Rachael and I wheeled her outside to sit in the sunshine. She loved that. Absolutely loved it. She just silently sat there and grinned. Rachael started combing Anissa’s hair. It must’ve been very soothing because Anissa zonked right out, peacefully.
Monday was definitely a good day.
She held her head up high the whole time. Her trunk control was the best I’ve seen so far.
On Tuesday, I took Nathaniel up for what I thought would be a morning visit.
When Nathaniel and I got to the rehab center, Ali was already there and sitting in the main gathering area with Anissa. They were on the other side of the room, a sea of wheel chairs separated us during a Kwanza celebration. There were some local school kids who came out and very graciously played various instruments and read some pieces. Nathaniel and I made our way through the crowd and got to Anissa. She was thrilled to see us. One of the things that she’s in need of working on is volume control on her voice. She needed that before all this happened actually. When we got there, Anissa looked up at us and said, “you’ve got to get me out of here. They’re trying to kill me.” She nodded her head at the kids doing the musical performance. Then one little boy pulled out a violin. Anissa looked back up at me and said, “See!”
I leaned in and told her the boy was the same age as Nathaniel and she needed to show some respect.
She went back to watching, but every wrong note caused her to look back up at me and raise her eye brow. There was nothing that could be done. We were in wheelchair grid lock and weren’t going anywhere anytime soon. We were all chuckling.
When the show ended and we went back in to her room. For roughly 2 hours, it was Anissa, exactly as she should be. She was witty, sarcastic, hilarious and downright fun. We talked about current events, some movies and the kids.
We wound up leaving as the beautician was ready to take her in. She needed it.
Nathaniel and I left on cloud 9.
We got home with about 5 minutes to spare before a work meeting. As I was dialing in to a bridge call, one of the nurses called. Let’s just say they were having a difficult time getting Anissa calmed down and wanted to know about giving her medication to basically knock her out, which means she would miss a therapy session.
I told them I’d be right there and Nathaniel and I started off on another trip back up. I took the work call from the road with only minor technical difficulties.
Good times.
When we got there, Anissa was “non-compliant” with just about everything.
I walked in and just started talking to her and got her cleaned up a little.
After a while, she said, “I don’t know what happened. Last thing I remember, I was in the beauty spa and you guys left.”
She lost it then. She was distraught that she had just forgotten the past 2 hours. She balled hard.
I held her close and Nathaniel came in and we did a mini-Mayhew family hug. Anissa kept crying hard.
We both tried calming her down with minimal results.
Then, something amazing happened.
Nathaniel started singing softly.
“Don’t worry…about a thing”.
“‘Cause every little thing’s gonna be alright”
Anissa joined in, slowly at first. She’d finish a line. Then eventually she was singing right along with us.
The tears stopped and were wiped away by my little 11 year old son who impresses me more and more every day. He’s going to out grow my shoes very soon.
After that, Anissa was relaxed, talkative, more positive.
I think I’ve been a little lucky with Anissa’s responses and the timings of the visits from the kids. I may need to rethink that. She needs her to get a little more consistent with her moods for their sakes. I’m going to give her a break from the kids for a day or two and see how that goes before taking Peyton up 1-on-1.
So here’s where you, the reader, come in.
This is me asking for help.
Your prayers, love, comments and thoughts have carried us this far. You’ve picked me up when I was down.
We’ve done some brainstorming here and have come up with a laundry list of things you guys can do to help:
1. Please keep praying. It’s working miracles.
2. Record your encouraging thoughts and/or comments and email them to helpforanissa@gmail.com. Please try to keep it somewhat short, say or show your name to help her with the recognition. I’ll collect them and play them for her. I think the variety will help.
3. Send cards/photos/things to stick to the wall to our PO Box. Things with texture are best I think. Make sure to attach your name in there to again help with recognition. She’s able to read, but her vision is still a little wonky. We’ll be recycling the ones that are on her wall now so she gets some variety. The address is:
Peter Mayhew
860 Johnson Ferry Road 140-184
Atlanta, GA 30342
4. I’m not a twitter person, but my wife is. If someone could gather up a collection of what’s been said about her on twitter (the encouraging stuff), I’ll see if I can print them off with really big font and build a book. Amy Driehorst
5. A few folks have commented on getting a full spectrum light therapy lamp. Chrissi
6. Our pal, The Jennster, is organizing an online healing for Anissa. 12/30/09 at 7:00 pm EST. Pray, focus, think of my wife at that time. If you’ll recall, we did one on Thanksgiving night and a day or so later, she was out of the coma. This time we’re focusing on her right side.
7. Send over funny simple dvds. Glee, Modern Family, Scrubs, Karate Kid, Robot Chicken,
8. Need a digital picture frame - I have plenty of usb sticks from trade shows over the years and can cycle through those. - Andrea’s Sweet Life, Beth, Cindy
9. A stress ball or two. - Lauren, Nihilady
10. As odd as it may seem, if you can’t help us out, help someone. Perform a random act of kindness to a complete stranger.
11. Late addition - Her favorite Star Wars character is Yoda. If someone (maybe a clone wars fan) could gather some “Yoda-isms” I’ll print those off as well.
P.S. If you are planning on buying something and sending it in, please post what you’re getting in the comments of this post. I really don’t need 50 digital picture frames. Just one or two.
on Dec 30th, 2009 at 12:19 am
We sing that song together here. That made me tear up. Your son is AMAZING. I’ve never met such a cool kid.
Will send pictures and something to love on soon.
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on Dec 30th, 2009 at 12:21 am
I will absolutely send a digital picture frame! I will UPS it tomorrow - if UPS is ok?
I’m so glad to hear how well Anissa is doing. I miss her wit and sarcasm and loving kindness, oh so very much.
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Peter Mayhew Reply:
December 30th, 2009 at 10:34 am
Yes, thank you very much. UPS is fine.
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on Dec 30th, 2009 at 12:23 am
I know the back and forth progress must be hard for you and the kids and frustrating for Anissa, as well, but over all…it’s forward motion and fired or not, you’re amazing, Peter. I don’t think Niss could have come this far with you (and those around her every day). I will most definitely be participating tomorrow and focusing everything I’ve got on Anissa and her right side. PLEASE let her know I love her and think of her a thousand times a day.
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on Dec 30th, 2009 at 12:24 am
My company has tons of stress balls lying around; I’ll drop a few in the mail tomorrow. Keep pressing on, Mayhews!
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Peter Mayhew Reply:
December 30th, 2009 at 10:37 am
Absolutely. Send away! Thank you!
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on Dec 30th, 2009 at 12:24 am
I will happily send a digital photo frame, if no one else has signed up yet. If they have how about a Target gift card?
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Peter Mayhew Reply:
December 30th, 2009 at 10:36 am
Target gift card sounds perfect.
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on Dec 30th, 2009 at 12:24 am
you’re fired. That’s the Anissa we love!
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on Dec 30th, 2009 at 12:25 am
Your family is simply amazing. I may never meet you, but please don’t think I’m too weird for loving you all. Wow.
I would be happy to send some DVDs or things for the wall, but I don’t know Anissa, so need a little guidance. I will check her to see what sort of things you all suggest..
Peter, may God continue to give strength. And when this is over, a Hawaiian vacation.
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on Dec 30th, 2009 at 12:25 am
Social comments and analytics for this post…
This post was mentioned on Twitter by grace134: RT @AnissaMayhew: New blog post: Three Little Birds http://www.hope4peyton.org/2009/three-little-birds/...
on Dec 30th, 2009 at 12:28 am
I think kids playing the violin is just about as close to torture as I could stand, so I chuckled throughout that part of your post, thinking of her in wheelchair gridlock!
Nathaniel singing to her? Absolutely lovely. You guys have raised some amazing children.
And, I will be thinking of her at 7pm tomorrow.
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on Dec 30th, 2009 at 12:29 am
I’m sure you will get an outpouring of love and offers here for all of those things you need. Anissa’s fans are awesome like that!
I think I am gonna send you guys up a Dairy Queen gift card, so you can take the kids out for a treat. I know it’s not much, but since my family owns a DQ, it’s the least I can do.
Sounds like you and Anissa got yourself there some amazing kiddo’s. That’s so awesome!
Praying for dear Anissa, I miss bickering with her over who gets to be Ralph Macchio’s twitter girlfriend. Needless to say, Anissa put me in my place the last time I talked to her, and sadly, I lost that fight.
Fight the good fight, you guys are getting there!
Jen
@mommyinstincts
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Peter Mayhew Reply:
December 30th, 2009 at 10:39 am
There’s a DQ just around the corner and the kiddos LOVE it
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on Dec 30th, 2009 at 12:30 am
My family and I will be on a plane headed back to the southeast at seven eastern. We will clasp hands and stand in belief with you that your wife will continue her leaps-and-bounds recovery.
We will also pray God’s favor over the two of you and your children.
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on Dec 30th, 2009 at 12:30 am
Peter
I was sent a digital picture frame by mistake over the holidays and the pr agency has asked me to send it out to someone who could use it . It has the weather and time as well… can I send that to you and Anissa?
I don’t know you or your family but your story has been very important between my husband and I. We share in your progress and if you ever need to vent please feel free to drop an email. He is in the medical field and can always give you real answers.
Take care always!
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Peter Mayhew Reply:
December 30th, 2009 at 10:41 am
Beth, that’s awesome. Send away please! And yeah, I woulnd’t mind getting an educated opinion….I’m flying by the seat of my pants these days. Please shoot me his email.
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Beth Reply:
December 30th, 2009 at 12:23 pm
Peter,
Gift package in the mail:
It includes:
-a digital frame by Estarling with touch screen
-a pair of pajamas from Haralee.(http://www.haralee.com) She specializes in making garments for women who who have hot flashes. I am assuming Anissa will have a use for these!
-a tactile sqeezie ball from Oo Ma Loo toys; it’s actually a dog toy but, it will fit Anissa’s needs when she needs to make her voice known. (http://www.alphadogshopper.com)
-a game for the fmaily to play with Anissa!
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Beth Reply:
December 31st, 2009 at 2:34 am
Hi Peter,
You will have the package by the latest on Monday due to Holiday shipping!
I included a card with our email in it but my handwriting is atrocious. How do I send you my husband’s email address without posting it?
Enjoy your New Year with Anissa and the kiddos!
Beth
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on Dec 30th, 2009 at 12:34 am
All my thoughts and positive energy will be on Anissa and her right side today, tomorrow and for as long as you all need it. I think of your family every day. Thank you for taking the time to let us all know about your astonishing love and strength.
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on Dec 30th, 2009 at 12:35 am
cause every little things, gonna be alright
that song gets our family through the tough stuff too. Always in prayer
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on Dec 30th, 2009 at 12:36 am
Many, many prayers…
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on Dec 30th, 2009 at 12:38 am
Amazing. I’m so happy to see that she’s been making such great progress. I will totally be sending a hand-made card and I will be kind and not glitter up your wife and children.
I have a 20 dollar gift card to FYE that I received over Christmas that could be used to purchase CDs or DVDs. The only problem is that I don’t watch movies, and all of my music is digitally obtained. Its been sitting on my table, just looking at me helplessly. Homelessly. Doomed to go unspent
If you guys have FYEs over there, drop me a line at rook[at]aforkinthesocket[dot]com and I would love to donate it to you guys!
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on Dec 30th, 2009 at 12:39 am
I just found your blog via 5 Minutes for Moms. I’m speechless, moved, and aching for your precious family. Just know, you have a new prayer partner.
Blessings,
Sandy
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on Dec 30th, 2009 at 12:41 am
I have the lamp - It’s a small table side lamp. Will that work?
email me @ chrissi.johnson@gmail.com
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Peter Mayhew Reply:
December 30th, 2009 at 10:42 am
Absolutely.
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on Dec 30th, 2009 at 12:44 am
Consider the picture frame there immediately. It will be in the mail tomorrow, I have 2-3 left over from Christmas. Its the least I can do. I don’t know Anissa personally but enjoyed her tweets and then have been inspired by her since. Your ability to share her story is amazing and she is lucky to have you. My thoughts will be with you constantly as they have been the day I heard the news.
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on Dec 30th, 2009 at 12:45 am
Wow, there were no responses when I started typing (maybe I should work on that 200wpm goal LOL), I don’t want to bombard so anything I can do to help, just let me know
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Peter Mayhew Reply:
December 30th, 2009 at 10:44 am
Honestly, having a spare or two wouldn’t hurt. Just in case she drops one.
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on Dec 30th, 2009 at 12:50 am
I have started a flickr group-just for Anissa. I’ll get more pics/people to join then you could grab the pics for one of the frames?
Come on, gals, help me out!
http://www.flickr.com/groups/1289264@N20/
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on Dec 30th, 2009 at 12:52 am
Sure we all know Anissa is amazing. But really? I just can’t beleive how wonderful YOU ARE. I am so impressed.
I think of all of you every day. I went and rented all the Karate Kid movies…and cried.
I will be sending a mini vid and tactile cards of encouragement ASAP.
Bless you.
You are not alone.
We are all here.
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on Dec 30th, 2009 at 12:58 am
I’ll do whatever I can. I love that you’re taking the time to include us, Peter.
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on Dec 30th, 2009 at 12:59 am
I hope she’s watching the Robot Chicken DVD’s I sent in the mail the week prior to the event… maybe that will make her smile. I will send a video encouragment for our beautiful anissa. if i can get my hands on more dvd’s, you know i will!!!
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Peter Mayhew Reply:
December 30th, 2009 at 10:45 am
Dude. I totally forgot about those. GREAT reminder.
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on Dec 30th, 2009 at 12:59 am
Yes, yes, hell yes. Thanks for being specific in your needs. Hitting the mail tomorrow.
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on Dec 30th, 2009 at 1:01 am
my husband does social media monitoring and I think he can pull the twitter stuff pretty easily. He set up the search terms tonight. We’ll see what we get in the morning. We should be able to get that together for you.
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Peter Mayhew Reply:
December 30th, 2009 at 10:48 am
Yes, absolutely.
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Amy Driehorst (@amyjod) Reply:
January 12th, 2010 at 9:27 am
Hi Peter,
Thank heaven for technology! We have the results all pulled together. I can very easily format them any way you like. I know you mentioned wanting to create a book with very large font. If you’ll tell me how big you need it to be, I can format the report (which will be an Excel spreadsheet) so all you have to do is hit print.
Thanks,
Amy
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on Dec 30th, 2009 at 1:06 am
Oh, this is fate! My 6th graders class is going to be decorating a Red Cube from the Chicago Art Institute’s program http://www.500-ways.com/ The cube came with instructions to share with someone who needs kind thoughts and my older son (the cube ambassador) suggested his class send love to your family. Give us a couple of weeks to get the students to decorate it and get it to your family.
And I’ve got stress balls in need of a new home. Quirky, but true.
Oh, and a bit of love to Anissa from her friends in Chicago: http://whrrl.com/experience/story/18772838?wref=sr_1_1_ttl
Here’s hoping for more good news in 2010.
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on Dec 30th, 2009 at 1:14 am
Hi Pete,
A suggestion for help calming down so Anissa can sleep. Get some time release 3 mg. Melatonin at a health food store. It has worked WONDERS for Dad! He has had issues with doing strange things in his sleep. Sleep walking and talking and hallucinations, night mares, doing bizarre things at night that kept me jumping up to put him back to bed, and cleaning up a trashed bedroom. We tried some prescription stuff from a psychiatrist, and the darn stuff just made him worse! He was doing all sorts of stuff at night and did not know it because the prescription sleep aid was putting him too deep under. I read about Melatonin helping with sleep disturbances in caregiver blogs for people with Parkinson’s and lewy bodies. Melatonin really works! Dad sleeps through most nights now and no weird sleep behavior! In fact I will send you some Melatonin. Calcium with magnesium supplements help your cousin Judy sleep without sleep walking, which she does if she doesn’t take it. Aunt Eileen told me that and so Dad takes calcium and magnesium too.
Praying for you all,
Love,
Pat
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Peter Mayhew Reply:
December 30th, 2009 at 10:49 am
Sounds great. Will read up on it too.
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on Dec 30th, 2009 at 1:15 am
12/30/09 7:00pm is ANISSA time! I will put it out there to the universe. My feelings for Nathaniel are beyond words. His tender understanding towards his mom makes me weep. God blessings, Peter.
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on Dec 30th, 2009 at 1:17 am
If I had a son, I would want him to be just like yours. My God. What an incredible young man.
What an incredible lot of you. You BET we are all praying. I don’t have any squeeze-y balls because my dogs eat anything remotely squeeze-y, but, babies? I am going to be squeezing out prayers and random acts of kindness like the madwoman I is, in your honor.
Loving you all from afar. Not every little thing will be all right, maybe, but all the big stuff will.
I repeat: You’ve got this. And we’ve got you!
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on Dec 30th, 2009 at 1:27 am
Still praying every night and will continue to do so; you can count on me at 7pm EST tomorrow, too.
Once again, thank you so very much for keeping Anissa’s online family in the loop: we sure appreciate the time you take to keep us up-to-date.
<3
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on Dec 30th, 2009 at 1:34 am
Anyone know of where to get those little plastic pieces to hang stuff from the metal framework that holds ceiling tiles up? I would love to get some for the ceiling in Anissa’s room. It would be really nice to be able to use the air space to make it more cheerful.
Thanks,
Anissa’s sister, Angela
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Shelley Philibin Reply:
December 30th, 2009 at 12:38 pm
Paper clips work in a pinch
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Becky Reply:
December 30th, 2009 at 2:22 pm
Angela, try school/teacher supply stores. If you can’t find them let me know.
Becky
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on Dec 30th, 2009 at 1:36 am
I haven’t been able to check the site in a couple of weeks–kept getting an error message, I assumed because the site was overloaded–so NOW when I read and see that she’s TALKING and LAUGHING and FIRING you! Hallelujah!
And your son? I love him. And now I will think of that every time I sing that song to my boys.
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on Dec 30th, 2009 at 1:36 am
I don’t know you or your wonderful family, but since I stumbled across this blog I have prayed for you every night. I tear up every time I read a new post. Just wanted to let you know that a stranger is thinking of ya’ll.
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on Dec 30th, 2009 at 1:52 am
I’ll try to figure out how to email a voice message and send one over. I’ll also find some things to send to you for the wall. And I’ll definitely join in on the online healing (wonderful idea).
So touched by Nathaniel’s singing. What an amazing child he is!
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on Dec 30th, 2009 at 1:54 am
Angela, I always used to see school teachers use bent paper clips for the ceiling tiles? Have you tried that to hang things?
Would a tactile blanket with different textures be helpful? I know I’ve seen them made before out of polar fleece (machine washable) and I’ve seen some with buttons and zippers and the like for practicing those when the time comes. Let me know - I would be happy to send one along!
Prayers, 12/30/09 7pm EST — and constantly. Sending you all lots & lots of love!
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Peter Mayhew Reply:
December 30th, 2009 at 10:52 am
That’s a great idea. The tactile blanket is a definite yes.
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on Dec 30th, 2009 at 2:06 am
angela, i live in the same town as the mayhews and have those ceiling tile clips on~hand as I use them frequently for work. email me @ kissthedog(at)yahoo and we can figure out a way for me to get them to you. i am in town and off work until the 4th. it truly would be an honor to help my favorite funny woman.
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on Dec 30th, 2009 at 2:11 am
I am so in awe of this woman. Honestly. And of you, Peter, for your strength through this time! I have a question…does Anissa understand the crazy love movement that she has started? It is awe-some to watch!
Praying every night!
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Peter Mayhew Reply:
December 30th, 2009 at 10:54 am
She is aware of some things. Not all. I didn’t want to fully overload her. Also, what she remembers daily is different as she’s still working on processing things. She didn’t remember Peyton had cancer until this past weekend. So, I’m trying to be careful with what she is exposed to. I have shown her the Glee song video
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on Dec 30th, 2009 at 5:17 am
Glee Season 1 is on its way!
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Molly Reply:
December 30th, 2009 at 9:11 am
I’m going to send pictures. I think it would be cool if we could put together some sort of book for her to hold, photos of her, and us, and incorporate that with some of the tweets. If that sounds like something you’d want Peter, just let me know! I was thinking we could do it scrapbook style, so that the photo and tweet from the same person were on the same page. I’d be happy to put stuff on it so that it’s fun to feel! If you want it email me at mmc2153 at columbia dot edu.
Or maybe I’ll just make one and send it. lol. I know you’re a busy guy.
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Peter Mayhew Reply:
December 30th, 2009 at 10:55 am
I think that’s an awesome idea. Yes please!
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on Dec 30th, 2009 at 7:31 am
I agree with Rachel up there… This is awesome to watch and be a part of… I may have only met Anissa once (and called her Amy accidentally) but reading these posts and being made part of her recovery has made me love you all so very much! I will be praying tonight at 7 tonight for anything you need (as long as I’m not yelling at my kids, don’t want those vibes mixed in there YIKES!). Be strong Mayhew family. There are so many people out here pulling for you, every little thing IS gonna be alright.
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on Dec 30th, 2009 at 8:12 am
Praying. Been praying. Won’t stop praying. But praying specifically and extra-focused tonight at 7.
I’d conk out if somebody started brushing my hair too. One of the best feelings in the world! Seriously.
I’ll be glad to get the light, but don’t want to duplicate. Please email me and let me know if there’s still a need for that.
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on Dec 30th, 2009 at 8:58 am
I notice from the picture that Anissa may be getting dressed in grubbies. Having been sick for a while, she may be getting sick of this. I know I was when I did not have a choice about the clothes I was wearing for a few months.
The other thing, if you are not having them have her do it already, is getting dressed all the way down to shoes (google FlyLady- she rocks). If you are in full clothes, you are in work mode. If you are in jammies/grubbies/Snuggie, you are in lay around mode. If the staff is not doing this, put a note on her bed and talk to her team.
I personally wear shoes all the time. Seriously, as soon as I am out of bed until when I go back into said bed. It does make a difference in my attitude, even when I am feeling very bad.
As for food, they can order thickeners that have no flavor, so that she can have a wider variety of liquids. Not eating sucks. Especially in a place where she can likely smell food that is going to other people. (Which frankly would piss me off too) And the thickener can be adjusted as she gets stronger at swallowing.
As for sun, make sure she has a coat, etc..up there. I know you arethe South, but some nurses might not want her to go outside in just street clothes. (And they don’t tell you that)You can also let her therapists know how much she would love being outside- there are lots of things they could do with minimal disruption outside that are therapeutic.
If you could let us know what tshirt size, I do know of some, er, tshirts that, while inappropriate, are just darling to wear to therapy sessions/doctor appointments/while PMSing.
My message to Anissa:
Anissa, you don’t have a choice about being strong, because that is what you are.
It is alright to be pissed off about the general situation- it sucks big hairy donkey balls.
It is not alright to sabotage your therapy and your recovery with unproductive anger.
If you do that too much, it will not work to your advantage when you need to pull out that Inner Bitch to advocate for yourself.
We are praying for healing that progresses steadily.
For good, healing sleep with every night and nap.
For patience for you, your family, and your healthcare team.
For the ability to see the humor through the pain and frustration, and to remember that this will be one beautifully inspiring/informative/sarcastic book. (And that you can change those names *just a teeny bit*, so that those who cross you will know full well you are making fun of them). And that book will make money. Which you can use to send free copies of this book to any jerk there.
And finally, for your swallowing to work enough for you to be able to eat real food. Soon. And that your husband remembers to post how much you loooooooove Godiva chocolate, and what kinds, so that we can know which ones not to eat when we buy them. For you. Really
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on Dec 30th, 2009 at 9:23 am
I love that Anissa said ‘You’re fired.”- That’s our girl! Sounds like you’re set for digital picture frames and stress balls, the lamp and the twitter print outs so I’ll work on some DVDs and email some images and words of encouragement. She’s doing so well and your family’s steadfast love and support is truly inspiring. I’ll be sending love and prayers as always but especially at 7 pm EST tonight. Don’t worry, about a thing…Anissa, we love you and we need you. xoxoxo
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on Dec 30th, 2009 at 9:34 am
Thank you for keeping us informed of all the progress. Anissa is a fighter! I’ll get the kids to make a get better video and email it to you.
Keep up the great work with Anissa & the kids. You are amazing!
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on Dec 30th, 2009 at 10:04 am
Peter
Thank you for allowing us to walk with your family through this tough journey. I’m going to share your note on my blog to rally some more support. Count on my prayers this evening!
Keep believing!
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on Dec 30th, 2009 at 10:08 am
OMG this is just getting better every day! She fired you!! LOL.. and your son.. Wow.. if i had a son, I’d definitely want him to be just like yours… but I don’t.. I have twin girls… they can still be like him, only girls.. .:)
You are an amazing family. I just love reading your updates. I end up reading them to my hubby when he gets home from work too.. He’s cooking, I’m reading… He asks every day if there’s anything new…
Please know that you most definitely have our prayers… especially at 7pm! I saw a few people had already volunteered with the photo frame, so I’ll work on something else to send on! If there’s anything else in particular, please let me know!
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on Dec 30th, 2009 at 10:14 am
My heart just soared at the mention of the Three Little Birds song. That’s been me and my grandma’s “thing” for years, and I love it. It’s gotten me thru some VERY hard times.
Your son is amazing.
So…. I literally just pulled our Full Spectrum Light out of the closet the other day, and last night, my husband said last nite “sell that damn thing on craig’s list”.
It’s yours.
It somehow made him crabbier. Go figure. It’s hardly been used. (I say “don’t blame the light, mister.” lol.
I’ll happily give up the Craig’s List profits if it will help Anissa. In a heartbeat!
If there’s anyone out there that has free or discounted shipping available, I’d love a partner in this. The light box is about 15×9x4 (???) and I bet it weighs about 5 lbs? I’m guessing.
Please email me and we’ll arrange shipping. If you would like to help with shipping, do the same.
I’m so proud of your whole family. Simply amazing.
I know you wish all these people didn’t know you, (because of the reasons they do) but I swear…
the world just had to know you all.
Especially that lil’ sassy momma you got there.
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on Dec 30th, 2009 at 10:14 am
Nathaniel sounds like the most mature, caring 11 year old ever. “Don’t worry”… just brilliant Nathaniel! Your Mom and Dad are lucky to have such a wonderful son.
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on Dec 30th, 2009 at 10:48 am
My company has a ton of stress balls too, there are a several different shapes so that might help with the tactile exercises too. I’ll see about getting ahold of some of them.
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on Dec 30th, 2009 at 10:49 am
Wow! I’m sending a card out today for Anissa! Nathaniel…you are the most special son anyone could ever have! This post brought me to my knees in tears! I love the fact that she fired you Peter! That’s Anissa! She’s in there and she’s fighting so hard to get out! Keep doing what you’re doing and everything is going to be fine. We love you Mayhews!!!!! ♥
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on Dec 30th, 2009 at 10:55 am
“She told me I was fired.” Oh God that made me laugh!
When your son began to sing, I began to cry. He is clearly amazing (probably gets it from his amazing parents).
Piling on the prayers!!
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on Dec 30th, 2009 at 10:58 am
Peter, we will come up with something to brighten Anissa’s day plus Katia has something for Peyton:)
Love each of you and praying daily.
Love, Tracy and Katia
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on Dec 30th, 2009 at 11:04 am
I just heard about your family from a forum I was reading…I will certainly keep you and your family in my thoughts and prayers. It sounds like the progress she is making is a sure sign that her brain is creating new pathways.
Our dad has a heart attack Thankgviging morning and suffered a stroke at some point during his 2 week sedation (he had serious complications with his bypass)…anyhow, at first, he was really not himself…we said he was in a state of a combination of past, present and Movies (he, too, did the role playing as if he were in the movie)…Now, a few weeks later, he is doing so much better and making great progress. So, I have no doubt your wife will continue to improve.
Between God and the inspiration He gives medical professionals, so many amazing things are possible.
And, I truly love that song…I love Bob Marley and the rendition they do on Noggin (the kids channel). I think that is definitely my favorite Bob Marley song and how cute of your dear son to sing it to you…and then all to sing it together.
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on Dec 30th, 2009 at 11:23 am
Man, crying AGAIN! You Mayhews are killing me. What a sweet boy you have. BTW, I have a 10 yo daughter. She’s very cute. I’m thinking she’d make a very nice girlfriend/wife for your son in another decade or so. Seriously.
We’re in FL visiting my parents, but will definitely send something when I get back to ATL.
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on Dec 30th, 2009 at 11:33 am
Does Anissa like the movie “My Big Fat Greek Wedding”? It is really funny and we have a brand new copy if you would like it.
I will be sending a card. You are doing a spectacular job and we are wishing you all the very best. Hugs.
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on Dec 30th, 2009 at 11:52 am
I am still praying! Glad to hear she is doing better, bit by bit! I will be sure to send a card.
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on Dec 30th, 2009 at 12:05 pm
Continued prayers are being lifted up!
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on Dec 30th, 2009 at 12:20 pm
I really wish I could fly down there to visit. But I will send something soon. Praying, bawling at your post as usual.
Steph
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on Dec 30th, 2009 at 12:26 pm
I live in Atlanta, and as I don’t know you, I do read the blog….if you need me to do anything to help in anyway since Im in the area, please let me know……I am more than willing!
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on Dec 30th, 2009 at 12:30 pm
I saw a real honest to goodness tape recorder at Walmart yesterday. Did you find one?
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mayhewp Reply:
December 30th, 2009 at 12:46 pm
Actually I did. But appreciate the thought tho.
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on Dec 30th, 2009 at 12:33 pm
http://thinkexist.com/quotes/yoda/ ~ yodaisms. :o)
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on Dec 30th, 2009 at 12:43 pm
This post made me cry. Anissa we met at Blogher and waited in the airport together in Chicago. I have been reading and following your progression. My heart goes out to you and your family. I am sending as much love as I know how to!
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on Dec 30th, 2009 at 1:05 pm
Peter, I have Karate Kid on the way to you from Amazon.
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on Dec 30th, 2009 at 2:19 pm
Awsome! I will attempt to make a video message for her and send something for her wall. I am so happy to read this and I will be trying to come back and visit soon
All our love! xoxo
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on Dec 30th, 2009 at 2:29 pm
I don’t know you all. My husband and I have 3 boys. Found you through the sphors are multiplying.
And I am not a starwars junky but i do love the yodaism’s. My boys and I will make some big Yodaism posters that she can read and send them too you on Monday. Thinking of you and your family often.
Stay strong in the Lord. She is going to make it.
Layla
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on Dec 30th, 2009 at 3:03 pm
i just found your blog and read and read and read. My husband and i have two girls (7 and 4) and we will all be praying for Anissa and you and your children. I’d like to share my favorite verse with you….Isaiah 33:6…And He will be the stability of your times. A wealth of salvation , wisdom, and knowledge. The fear of the Lord is his treasure.
Also, here’s a link to Yoda Speak http://www.yodaspeak.co.uk/index.php YOu can type in anything…a phrase, a question, a sentence and it will convert it to Yoda Speak…hours of fun!
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on Dec 30th, 2009 at 3:04 pm
Oh yeah, she would like some coffee ice cream
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on Dec 30th, 2009 at 3:16 pm
Hi Peter… Not a Star Wars fan as Anissa but I gather some of them and will send them to helpforanissa@gmail.com. I tried to classified them so it would be easier for you…
Still praying for Anissa!
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on Dec 30th, 2009 at 3:28 pm
I don’t know you or Anissa and I’ve never read her blogs but I just came across this and wanted to let you know one more person is thinking about you and your family right now. I will find someone to help today.
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on Dec 30th, 2009 at 3:33 pm
Sent SNL Best of John Belushi. Will be looking for some good tactile stuff to send too.
And is there anything Angela needs, I would like to bless her.
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on Dec 30th, 2009 at 3:36 pm
Thoughts and prayers constantly headed your way.
I have a Scrubs DVD I will send. I hope it will help.
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on Dec 30th, 2009 at 3:53 pm
Crying and laughing and crying some more. You are all in my thoughts and prayers. I know the down days must be so hard, but those up days must just be wonderful.
I’ll see what I can find as far as wall art and maybe some texture type things that I can send.
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on Dec 30th, 2009 at 3:56 pm
i work on the freaking clone wars. what the hell do you think she’d want and i’ll try to get it.
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on Dec 30th, 2009 at 4:08 pm
Hey Peter - I have been following your story from Aiming Low, where I first fell in love with your wife’s sense of humor (very near to mine! =) Keep the faith - you are doing an INCREDIBLE job, as are your children. Nathanial is wise beyond his years…
Will definitely say a prayer tonight at 7:00 your time and will find something to tuck in the mail.
Blessings!
Kim
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on Dec 30th, 2009 at 4:21 pm
I feel so aware of the beauty of how you have shared this experience. Annissa is lucky to have you and your meticulous attention. WE are lucky to have you, so we can be informed and involved. Asking for help is a gift to all of us. Thank you.
Prayers and intention are immediately available. More will follow…
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on Dec 30th, 2009 at 5:42 pm
I read one of Anissa’s posts from Five Star Friday quite a while back; now I’m a subscriber… I’ve been such a lurker up ’til now, but I’ve been praying for all of y’all, and the singing made me get weepy!
There’s a girl in Oklahoma cheering for you!
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on Dec 30th, 2009 at 5:49 pm
you are so blessed to have such an incredible family, I hope my sons can grow up and have the strength yours does.
Everything you have been saying sounds just like the Anissa I know and love, shes in there and shes fighting to come out! Love that she fired you
Will be praying with everyone tonight, as I have been every night.
Got here kinda late and looks like most everything is covered Please let me know if there is anything else I can do.
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on Dec 30th, 2009 at 6:32 pm
Peter,
I work at Tiny Prints and would be happy to assist any way I can. We have photo books now and I’d be happy to help put something together.
Hope you and the family enjoyed Megan Jordan’s card.
Let me know what works best for you.
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on Dec 30th, 2009 at 7:38 pm
Putting together an email with Yoda-isms for you. I’ll be sending it shortly!
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on Dec 30th, 2009 at 7:45 pm
I’e been lurking for a while, but I wanted to let you know I am praying for Anissa and all her family. As someone who is a stroke risk, she is on my mind every day. I know I only met her once, briefly, across the table, stuffing swag bags for The People’s Party.
About all I can send for humor is “Stranger than Fiction.” I don’t think South Park episodes would be appropriate.
Thank you for keeping us updated.
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on Dec 30th, 2009 at 7:49 pm
Please let me do the Yoda-isms. It’s a lifelong geeky dream to collect them.
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on Dec 30th, 2009 at 7:59 pm
Praying and ready to focus on and send healing thoughts for Anissa!
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on Dec 30th, 2009 at 8:02 pm
Prayers check.
7pm tonight I’m focusing on her right side!
Also researching yodaisms to send…
And maybe some goofy movies
You all are amazing!!
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on Dec 30th, 2009 at 8:03 pm
You’ve been blessed with an amazing family, and they are blessed to have you!
7pm EST is 1am GMT for me, but I’ll be praying for Anissa before I go to sleep tomorrow - as close as I can get.
Hang in there - you are doing a great job. Even if you were fired.
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on Dec 30th, 2009 at 8:07 pm
You had mentioned earlier on that you would like a tape recorder - something that would pick up ambient noises - I have an old school recorder that does just that. If you’d like it, it’s yours.
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on Dec 30th, 2009 at 8:09 pm
What a good kid you have! Love him!
I love that Anissa’s wit is showing through.
Keep your chin up.
Sending love, hope, and prayers.
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on Dec 30th, 2009 at 8:10 pm
Praying!
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on Dec 30th, 2009 at 8:16 pm
I am praying and praying and praying.
and tweeting.
may the force be with you and yours this night.
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on Dec 30th, 2009 at 8:32 pm
Funny DVDs and prayers on the way.
Squeezes to your amazing family.
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on Dec 30th, 2009 at 8:37 pm
I’ve got my Josh working on something yoda-related. He is his favorite too.
LOVE to you, Pete.
Anissa amazes me every day. MAGIC.
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on Dec 30th, 2009 at 8:38 pm
Thank you for sharing your trials and tribulations at this difficult time for your family i constantly check for updates and was moved to comment today. All your kids are amazing(I am always in happy tears reading) and i continue to keep you and your family in my prayers!!
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on Dec 30th, 2009 at 8:40 pm
sending my healing thoughts to anissa and your family… always.
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on Dec 30th, 2009 at 8:41 pm
we are praying for your family!
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on Dec 30th, 2009 at 8:45 pm
Amazing progress. xx continued prayers. I’ll definitely do a RAOK (#10). Let me know if you’d like me to put it up as in recognition to Anissa. Otherwise, it’s just going out as anonymous
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on Dec 30th, 2009 at 9:00 pm
Praying.
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on Dec 30th, 2009 at 9:21 pm
I’ve never met Anissa, but have heard a lot about her and have followed this every step of the way. I send prayers your way every day and have added you to the prayer lists of both my family and friends. My husband, daughter and I all said a special prayer for you two and the kids as well tonight. God Bless you all and I’ll continue the prayers!
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on Dec 30th, 2009 at 9:56 pm
I met Anissa once, and I made an ass of myself. I stuck my foot so far into my mouth that you could see it coming out the other end. Anissa was gracious and explained my faux pas, then went on to not speak to me for a month, for hurting her friend. Later, we talked and I got to see her amazingly powerful love for her friends, her instinct to protect them, her ability to forgive even total assholes like myself. She is an amazing woman.
On second thought, though, maybe we shouldn’t remind her of that. Maybe she forgot and I might stand a chance of a friendship with her, down the road. I can’t imagine a better friend than Anissa.
I have complete faith that she will come through this will all her faculties intact. It’s one of the few things that I know, without a doubt. This is a long journey you’re on, and I know that it sucks. But, a woman as powerful in love as Annisa will kick this thing’s ass. With all the support and prayers and GLEE eps she has coming, it’s a forgeone conclusion.
Bless you, Peter. You are a hero of the highest order. There is probably a constellation of you, somewhere in the night sky, the kind of hero you are.
PS. Sorry you got fired.
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on Dec 30th, 2009 at 10:14 pm
The strength of your family amazes me with every post.
Count me in for sending some scrubs DVDs plus a cards with photos from BlogHer.
Much love,
Lolita
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on Dec 30th, 2009 at 10:18 pm
So happy to see the improvements that Anissa is making, i’ve been praying for her. I had planned to contact her and ask her for fundraising ideas for my 1 year old grandson that is dealing with a malignant braintumor and will go thru radiation starting next month. Then this happened. Reading thru her blog a few months ago gave me so much encouragement , she’s a fighter and such a wonderful mother. I’ll pray that she continues to improve and that you and the kids keep up with your strength.
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on Dec 30th, 2009 at 10:20 pm
Prayers, prayers, prayers for Anissa, you and your children….
Sounds like you have many Yoda-isms coming your way (since all your other material requests have been met!) Here’s a few in the meanwhile:
Do it or do not… there is no try.
Who’s your Jedi master? WHO’S your Jedi Master?
http://thinkexist.com/quotes/yoda/
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on Dec 30th, 2009 at 10:24 pm
We’re keeping on praying and we’ll send something to the PO Box, but the mail from Canada will take a few extra days.
You all are amazing!!!!
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on Dec 30th, 2009 at 10:39 pm
Hi Peter… praying for you all.
Here is a full page of Yoda quotes if you still need them. These are heard throughout my house *every* day…
http://starwars.wikia.com/wiki/Quote:Yoda
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on Dec 30th, 2009 at 11:22 pm
I’ll call in and have her name added to the prayer roll list with my church.
So glad to keep seeing these positive updates - your family is an inspiration. I don’t know you personally, but I feel connected to your wife as a fellow mother. Thank you for sharing all of this.
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on Dec 30th, 2009 at 11:38 pm
ON IT!
The note your mother sent thanking us for the gifts we sent for the kiddos was so nice to receive. Touched my heart. Please tell her she’s making a difference to us out here.
“No. Try not. Do… or do not. There is no try.” ~ Yoda
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on Dec 30th, 2009 at 11:41 pm
Continued Prayers from Kyooty/Mary
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on Dec 30th, 2009 at 11:50 pm
I pray for her and your family every night and I promise not to stop.
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on Dec 30th, 2009 at 11:50 pm
My heart aches each time I read about the lows. Hoping that those lows become fewer and fewer as Anissa continues to get stronger. Try to take care of yourself as well, as this is quite a heavy load you are carrying. I know that moral support isn’t as helpful as actually being there to help, but moral support you have in spades from me even though I don’t know your family IRL. I missed the scheduled healing time, but that won’t stop me from focusing on her right side now. Sending positive thoughts and virtual hugs to you all.
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on Dec 31st, 2009 at 12:05 am
Peter, I started a Group Playlist for Anissa with Inspiring “We Love You/Get Well” music. I’ve tweeted about it and invited folks to add songs for her, and will through the weekend…then, I wanted to send it on to you at the beginning of the week - say, Monday.
I’ll put all the songs in mp3 format on a flash drive for you to transfer to an iPod or a laptop - will that be okay?
So far there are 66 songs. I added Three Little Birds for Nathaniel.
You can see the list here: http://www.playlist.com/playlist/18467767819
Still praying hard!
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on Dec 31st, 2009 at 12:09 am
My littlest and I watched the Nogin Bob Marley clip not 30 minutes before I read your blog. Your 11 yr old boy is one awesome kid!!! (As are all of you Mayhews!) I have a great idea for a little something that’s soothing, tactile, and meditative - and some say healing, too. Sending a tactile surprise ASAP!!!
Big huge hugs and the best positive vibes to all of you!
Heidi
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on Dec 31st, 2009 at 12:17 am
oh that poor boy with the violin. Oh Anissa, this is the part of you that I love the most. I’m so proud of you. There are ups and downs in EVERYTHING in life, even the really good stuff isn’t always so good. Don’t get discouraged. I love you kid
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on Dec 31st, 2009 at 12:47 am
Peter, we are sending prayers your way each and every day. Thanks for the update.
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on Dec 31st, 2009 at 1:18 am
i’ll work on something to send you peter. you are an incredible man and your family rocks. anissa will get through this! sending you all love, hugs and thoughts of encouragement and health from arizona. -x-
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on Dec 31st, 2009 at 2:00 am
Peter,
I’ve been a slient follower of Anissa’s on Twitter for awhile, and I’ve been reading since this happened.
You mentioned Yoda-isms. My husband is a Star Wars nut. We were talking about Anissa and this request tonight, and he reminded me of this line: “Do, or do not. There is no try.” –Yoda teaching Luke to use The Force.
I got to searching for the line and came across this YouTube video, that go figure, is that scene. You can check it out here: http://www.youtube.com/watch?v=q3hn6fFTxeo&hl=en&fs=1&
Anissa, from what I know of her on Twitter, what I’ve read, and what I’ve seen from others, is a doer. She just needs help using The Force.
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on Dec 31st, 2009 at 2:48 am
I keep thinking how frustrating this must be fore EVERYONE involved. How exhausting and scary for you, how terrifying for her and absolutely bewildering for the kids. And I read this blog and I am consistently blown away that you are taking the time to share with everyone who knows Anissa via her blog or twitter or whatever. You are an amazing family. My thoughts are with you all.
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on Dec 31st, 2009 at 3:02 am
hugs and prayers for all of you. and blessings on husbands who hang in…
will be sending something shortly…
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on Dec 31st, 2009 at 3:28 am
Oh my goodness, she is just amazing. That you are having these conversations with her just blows me away. Amazing, you Mayhews are.
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on Dec 31st, 2009 at 3:42 am
Do you think Anissa would like a DVD of The Hangover? It’s the funniest movie I’ve ever seen. I don’t watch TV or own any DVDs, but I was going to buy that one. But, now, I’d rather buy it for Anissa.
My mother had a stroke in August, and she will be leaving rehab a week from Saturday. I don’t think it was quite as massive as Anissa’s and yet Anissa’s condition doesn’t seem very far off from what I’ve been seeing in my mother. I will continue to pray for Anissa at odd times of the day and night, but I firmly believe that laughter heals.
So, if you would like the DVD, please let me know.
My most heartfelt wishes for your family to have a blessed 2010.
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on Dec 31st, 2009 at 8:36 am
Happy New Year to your family - I truly hope it is a magical one for you.
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on Dec 31st, 2009 at 12:58 pm
I might not ever meet you untill we all get to heaven! BUT - your families faith and strength has been such an amazing encouragment, I will continue praying Gods provision and will in your lives - may this time of chaos, pain and tribulation bring glory to His name. Hoping the 2010 brings you all unthinkable joy!
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on Dec 31st, 2009 at 1:12 pm
Such a long road ahead, but she is doing so well. Hugs, good vibes, healing thoughts sent.
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on Dec 31st, 2009 at 3:55 pm
I’m another person who found your family through the Spohrs website.
Listen, about this evening confusion and ‘non-compliance’ thing. It might be her night meds. Some of those have some pretty alarming side effects, that just might be a problem for someone who’s supposed to stay in bed.
When my mother was living, her doc had her on Ambien at night. Within 20 minutes of taking that damned pill, she’d start hallucinating, out of bed, walking around, thinking she still smoked and trying to light a cig WITH her oxygen running, draping her oxygen tubing over the gas stove with the pilots lit, talking to people - some of them were dead, and others were in other states - none of them were in the room with her, etc.
I was having fits trying to keep her in bed. She, however, was having a ball, laughing at jokes only she could hear. Once, she, apparently, had an argument with her sister (who wasn’t there), and took a swing at her.
Finally, I started taking night meds away, one at a time, and then re-introducing them. It was the Ambien. Took that away, and everything returned to normal. Slept through the night.
Sorry for the long story. In any case, check out her night meds, and see if maybe some of the problem stems from them.
Take good care, and I pray God blesses you all with the courage and strength needed. He’s already blessed you with abundant and everlasting love.
Maggie
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on Dec 31st, 2009 at 8:32 pm
I’ve never commented but wanted to tell you that Anissa has been in my thoughts every day since this happened, I tell everyone I know to keep her in their thoughts as well..because your wife ROCKS!
And the Yodaisms? I am so on it! One of my best friends is a hardcore Star Wars Nerd, since both of us are without cool New Years Eve plans, we are instead trolling the internet and our memories for Yoda quotes.
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on Jan 1st, 2010 at 1:51 am
Hi, Peter,
I came across your blog through my dearest friend, Robyn Cobb - I am moved to tears by a multitude of emotions, and so grateful for your sharing so openly and candidly about what Anissa and your family is going through. I am honored to pray daily now for Anissa, you and your family.
All the best to you and your family every day!
Love, Beth
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on Jan 1st, 2010 at 2:02 am
I will be sending out some cards with different textures here shortly for you. I continue to keep your family in my prayers and your family is on our church prayer list as well. Here’s hopin’ to a bigger and better 2010!
Again, thanks for the updates!
~Jana
Germantown, OH
p.s. If it is ok with you I was going to see if I could send you what we call a prayer shawl down, it is a blanket that is made and blessed from our church…healing all wrapped into one type thing. If you could let me know her favorite color I will have it made! Thanks!
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mayhewp Reply:
January 1st, 2010 at 11:49 am
Yes, it’s ok and very much appreciated. Go with a purple.
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on Jan 1st, 2010 at 3:34 am
This is stunning. I know it feels like it’s going slow for you, and you miss your wife and the kids miss their mom, but it’s still amazing.
I have never ever heard of anyone progressing so quickly in their recovery from a stroke. Anissa’s strength still comes through. How frustrating it must be to her to lose time, forget things, or not being able to move as she’d like!
And you guys, you are absolutely AMAZING. You and the kids are so wonderful, so inspiring. The song bit made me cry, it was such perfect timing, such a sweet thing to do.
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on Jan 1st, 2010 at 12:22 pm
I can help with #10-random act of kindness.
I’ve had back problems for years and had two surgeries this past October. One of the surgeries was to repair a CSF (brain fluid) leak caused by a bone spur after surgery. Fast foward to this Tuesday the 29th (hubby’s b-day). I was having major back pain so bad that I went to the ER at Bayfront. An MRI was ordered and I was told that I had another CSF leak and was admitted. I didn’t get to my room until 10:00 pm or so.
That night I met the most amazing 85 year old woman, Jane that was my roomate. She was in the hospital because of a fall. We were both unable to sleep so we stayed up all night talking about everything. She even talked me into called her daughter at 6am to come see her.
On Wednesday morning my neurosurgeon came in and said that I didn’t have a leak. My pain was most likely caused by deep tissue/muscle inflamation. I was able to come home yesterday. The time I spent with Jane was awesome! I met one of her daughters and grandaughters. When Jane’s family was gone I was their eyes and ears. I helped her with her food, called her nurse when she needed. I made sure that she was taken care of when her family wasn’t their. I even had their cell number so I could call if needed and they had mine.
When I was leaving yesterday and saying my good-bye’s to Jane and her family, her daughter broke down a little while thanking me. She hadn’t slept in days because she was so worried about Jane. The night before was the first night she actually slept, she said it was because I was with her mother.
I will never forget Jane and her family, they are simply awesome poeple. I think Jane helped me more than I helped her. We got each other through a very tough time. So here are two random acts of kindness!
I’m praying for you guys!! I’ll be sending some pictures for the wall of fame. My 5 year old daughter made her a picture too.
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on Jan 1st, 2010 at 12:25 pm
Hi Peter:
Happy to help. I’ll record some brief greetings, including some jokes of the day, to share with you and Anissa.
And I’ll take this as an invitation to break out the box of scrapbooking supplies to add some embellishments and texture to cards, memento pages, and some decorations for her room.
Here’s to lots of hope, love, and big wishes for Anissa, you and your family in 2010.
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on Jan 1st, 2010 at 4:45 pm
Hey everyone..
I have a video montage I put together, with the help of many friends, photographers, supporters… called “Give Anissa a Hand” -
I’d like to get the link right to Peter’s hands, so he can show the family himself. (rather than link thru my blog)
Does anyone know if helpforanissa@gmail.com is the best email to use to send it to him??????????????
Thanks!
(if someone could email me the answer, I’d most appreciate it!)
david_and_tracie at ya hooo
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on Jan 1st, 2010 at 7:29 pm
Three Little Birds was played twice at our wedding reception. A good one to remember.
Keeping Anissa in my thoughts and prayers. When she’s in a good place, tell her Manic Mommy said Eff Me Loud. Hopefully she’ll laugh. xo
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on Jan 1st, 2010 at 10:51 pm
I’ve been thinking of Anissa today — I haven’t checked in for a few days. I’m hoping that this year brings your family and your wife much health and happiness.
The lows do sound low. But the highs sound amazing. Many hugs and best wishes to you guys.
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on Jan 2nd, 2010 at 12:40 am
Your family’s entire story is so amazing and inspiring. To me, the most inspiring thing of all is not the strength to overcome all the things you’ve been handed, but your dedication to your wife. As a newly single mom of 3, I’d pretty much lost faith in love (husband/wife love I mean). Seeing how much thought you put into your time with Anissa, and how much you love her, gives me hope. Thank you.
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on Jan 2nd, 2010 at 1:43 am
I’ve prayed and seeing the results of the prayers and help is wonderful and amazing! Your son’s gentle spirit made me cry. It’s so wonderful that she has so much support in her time of need. Thanks for sharing the testimonies of God’s great mercies on your family!
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on Jan 2nd, 2010 at 2:21 am
I have a pretty good list of Yoda quotes. Where can I send them, Peter?
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mayhewp Reply:
January 2nd, 2010 at 11:46 pm
The helpforanissa@gmail.com address works just fine for that.
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on Jan 2nd, 2010 at 3:28 am
much love and prayers to you all.
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on Jan 2nd, 2010 at 11:07 am
First Yoda-ism that came to mind is a favorite in our family:
“Do or do not, there is no try.”
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on Jan 2nd, 2010 at 5:41 pm
Dear Mayhew family. I hope Anissa will one day be able to read the words on the blog with the same eyes and sense of humour she used to see the world through. She seems like a tough one. My best of hopes for 2010. Dines.
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on Jan 3rd, 2010 at 1:11 am
I have been away from my fav blogs for the holidays so please forgive me if this idea was already mentioned. but have you seen 50 First Dates with Drew Barrymore? Everyday she woke up not knowing ANYTHING from her past. They began video taping every day so when she’d wake up she’d immediately view the tape and be able to ‘remember’ everything. I wondered if that was something you thought to do so she could remember each day she spends with her family. The more she watches the videos, perhaps those memories will begin to stick. Praying still!!
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on Jan 3rd, 2010 at 12:29 pm
Hey Peter,
Has anyone offered one of these? http://www.estarling.com
Its a wi-fi photo frame that will read a photo feed from google and pull in tweets that are live. Seems like it might help with some of the live updates and keeping the photo frame fresh.
Let me know if that would help out.
-Aman
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on Jan 3rd, 2010 at 8:49 pm
I had been away since before Christmas.
I sat in my basement bawling my eyes out tonight catching up on you and your sweet kiddos and how well they are dealing with ALL of this.
Please know your family is in my prayers!
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on Jan 4th, 2010 at 10:06 am
Continued prayers for Anissa and your family. What wonderful things you are doing. While I do not know you or Anissa, I will try to come up with something. Till then - you will all remain in my prayers. God’s Blessings to all of you.
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on Jan 4th, 2010 at 12:23 pm
Every time I read an update I’m torn to pieces. I can only imagine the rollercoaster and be inspired by your bravery while riding it.
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on Jan 5th, 2010 at 2:19 am
So, I don’t ‘know’ you or your family at all. I only stumbled across the site after Anissa’s stroke, after seeing a link on…Twitter, I think? Our family has had its own share of struggles (son with HLHS and husband with terrible thyroid cancer) and I’ve just been riveted ever since, cheering for Anissa on my side of the screen, crying like the mom that I am over your family reunions (mini and otherwise). I admire the strength and the humor with which you’re facing this new ordeal in your lives. It used to bug me when people would tell me things like that because I didn’t know how I did it and didn’t feel special, but trust me when I say that I’ve learned not everyone can pull it off and you’re doing far, far, far better than most.
Saw this little silly on dump.com today and it made me think of Anissa so I’m coming out of lurk-mode to share it. Maybe someone more talented than I could recreate him for to have in her room?
http://www.dump.com/2009/10/12/origami-am-i/
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on Jan 5th, 2010 at 8:50 am
[...] Anissa Mayhew is a mother, wife, a blogger and according to her Twitter page bio, she is “Like snorting pop rocks, but without the headache.” Anissa also is currently in a rehabilitation facility, recovering from the two strokes she suffered in November, 2009. According to her husband, she was not given a great prognosis, especially after the second stroke but as of December 30, 2009, she is coming back to the world, her world, and in her own Anissa way: There were some local school kids who came out and very graciously played various instruments and read some pieces. Nathaniel and I made our way through the crowd and got to Anissa. She was thrilled to see us. One of the things that she’s in need of working on is volume control on her voice. She needed that before all this happened actually. When we got there, Anissa looked up at us and said, “you’ve got to get me out of here. They’re trying to kill me.” She nodded her head at the kids doing the musical performance. Then one little boy pulled out a violin. Anissa looked back up at me and said, “See!” (more here) [...]
on Jan 5th, 2010 at 1:21 pm
Thinking of you all lots! Sending love and prayers!
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on Jan 5th, 2010 at 1:44 pm
Just stopping by to let y’all know I’m thinking about you and hoping there are more highs than lows on the roller coaster in recent days.
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on Jan 5th, 2010 at 5:16 pm
I was away the holidays. I am sorry that I was unable to sign and check in. It looks like things are looking up. It is going to be a good year for the Mayhew’s. Keep fighting Anissa, and Happy New Year to all the entire Mayhew clan.
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on Jan 5th, 2010 at 8:05 pm
We’re all pulling for you and your family — go get ‘em Anissa!
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on Jan 5th, 2010 at 9:15 pm
I’m somewhat new to this blog - but just wanted to say I’m saying prayers for your family.
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on Jan 5th, 2010 at 11:55 pm
i dont think i have ever spoken up. but i was led to your site via jenny the bloggess and have been following it ever since. as frustrating as my children can be at the end of the day when im sitting here i think of anissa making her recovery and fighting to get back to her children. you are doing such a wonderful job on the blog. i hope it serves as not only a healing instrument for you and your family, but a record of her strength for anissa when she is well and back to herself.
i pray for your family. for the day when the mayhew hug is an everyday occurrence again.
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on Jan 6th, 2010 at 12:59 am
Thanks so much for your continued updates. I’m always thinking of you and your wonderful family. While I haven’t met Anissa, I look forward to giving her a hug sometime soon! Please keep posting what would be helpful for Anissa to have since I’d love to contribute!
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on Jan 6th, 2010 at 10:48 am
just letting you know i’m thinking about you, anissa!
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on Jan 6th, 2010 at 2:40 pm
[...] Anissa Mayhew is a mother, wife, a blogger and according to her Twitter page bio, she is “Like snorting pop rocks, but without the headache.” Anissa also is currently in a rehabilitation facility, recovering from the two strokes she suffered in November, 2009. According to her husband, she was not given a great prognosis, especially after the second stroke but as of December 30, 2009, she is coming back to the world, her world, and in her own Anissa way: There were some local school kids who came out and very graciously played various instruments and read some pieces. Nathaniel and I made our way through the crowd and got to Anissa. She was thrilled to see us. One of the things that she’s in need of working on is volume control on her voice. She needed that before all this happened actually. When we got there, Anissa looked up at us and said, “you’ve got to get me out of here. They’re trying to kill me.” She nodded her head at the kids doing the musical performance. Then one little boy pulled out a violin. Anissa looked back up at me and said, “See!” (more here) [...]
on Jan 8th, 2010 at 4:54 pm
Do you still need Scrubs DVDs? There are 8 seasons and some have already said they are sending them in. I will send a couple, just don’t want to duplicate.
Any other funny DVD suggestions?
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on Jan 9th, 2010 at 8:20 pm
I just finished reading this book: http://www.mystrokeofinsight.com/ and think it might help you understand what Anissa is going through and what might help you help her.
I’m keeping you all in my thoughts, and hope for a quick recovery.
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on Jan 15th, 2010 at 5:31 pm
[...] a minute and read today’s post and if you can help out, please do [...]
on Jan 22nd, 2010 at 3:53 pm
[...] Hope4Peyton [...]
on Aug 28th, 2010 at 9:15 pm
Blessings to you!
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