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We got the funk

There is an inconsistency to Peyton’s reaction to treatment that makes it sort of exciting….not unlike being on the bomb squad I’m sure…blue wire or red wire this time??….red??…sure!…why not!….BOOOOMMMM!

On Tuesday she got her chemo via her port and she started her steroid round on Wednesday, they also upped the dosage of her 6MP chemotherapy to this radically confusing rotation. It’s now 1 ½ pills on MWF, 1 ¼ pills if the dog next door barks three times, it’s 1 1/8 of a pill if the mailman falls before he makes it 2/3 of the way up the sidewalk, it’s 1 1/16 of a pill if the moon is full and Saturn is rising….and just 1 pill every other day. It’s sort of like the nurses and doctors get together and have a meeting to make sure we’re still paying attention and decide to MIX it up to keep us on our toes.

The past couple of months we’ve been so lucky that Peyton has been doing remarkably well throughout her treatment, steroids have really been just a hungry time and nothing more and she’s felt so good. Unfortunately, no matter how good she might feel from one month to another, it is chemo, it is a nasty pool of crap and it does eventually catch up with her and this is her week for it to slap her across the face. Thursday she was grumpy and just out of sorts. Friday when I tried to drop her off to class she clung to my leg and started crying pathetically so I just took her back home with me, where she went immediately back to bed at 9:30 and slept until 1:00, not like her at all. Her color has been lousy, she’s been pale even though her counts were good and she has dark circles under her eyes.

She has the steroid funk pretty bad this month, terribly emotional and temperamental, just mopey and whiney. Every little issue becomes a FEMA level catastrophe of epic proportions….soon to be made into a Jerry Bruckheimer film starring Bruce Willis with a soundtrack by Aerosmith.

The only thing that has made her really happy this weekend has been that Pete made the drive down late Thursday night and surprised the kids by waking them in the night with kisses. Having daddy here hasn’t made it all right, but it has sure made it better. However, he will be leaving just as its all peaking, so we’ll see how that goes. I may be forced to hide her in the trunk and let him figure it out for himself around the FL/GA border.

Although we ask for your continued prayers for our sweet girl, we also ask for faithful prayers for our many friends waging much harder battles with their cancers and for the families who are now coping with how to live life without a precious child. God’s plans for us are so powerful and I truly believe that our job isn’t to always understand, but to just faithfully believe in it.

f.r.o.G…fully relying on God

2 Comments on “We got the funk”

  1. #1 Jennifer
    on Jan 26th, 2008 at 9:54 am

    Poor Peyton! Give her hugs from her Kansas clan!

    Keeping you guys in prayer always!

  2. #2 Penny Hawkins
    on Jan 26th, 2008 at 10:05 am

    Awe – Poor Peyton…. Just count down to NO CHEMO days. We are there and they are WONDERFUL. Keeping Peyton in our prayers….

    Penny, Nikki, Jared and William