If you’re familiar with the phrase “took the wind out of my sails”, then you’ll understand why I haven’t really felt like posting this week. I’ve been feeling that life has not only left my sails windless, but has ripped them off the masts, cut them into tiny bite size pieces, poured gas on them [...]

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I generally wake the kids with a minimum of sensitivity, a light thrown on and a quick “Get up, get up, get up” will do the trick. But this morning I felt compelled to jump right in bed with Rachael and snuggle down with my cuddle bunny. If you can get past the [...]

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There is really no worse feeling than helplessness when you love someone and you are watching them struggle. It hurts to see them hurt, you feel their pain and it just wrenches you inside to know that there is nothing that you can do. So we do the little bits that we can. [...]

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There is an inconsistency to Peyton’s reaction to treatment that makes it sort of exciting….not unlike being on the bomb squad I’m sure…blue wire or red wire this time??….red??…sure!…why not!….BOOOOMMMM!
On Tuesday she got her chemo via her port and she started her steroid round on Wednesday, they also upped the dosage of her 6MP [...]

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Peyton has had a very rough day today. Her school called me early to pick her up as she’d had a crying fit and wasn’t feeling well. I picked her up and she fell immediately asleep and was grumpy and moody the rest of the night. She complained that her leg hurt [...]

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